10-20% of the time, Lyme disease can cause chronic, mysterious, long-term illness. This typically takes six months or a year to ramp up.
By this time Lyme patients are going "..oh my gosh I have chronic fatigue, or fibromyalgia or very mysterious neurological effects of POTS, anxiety, depression..." just absolute havoc on their health system they can’t even remember that they got bit by a tick nine months ago, or six months ago!
The argument portion isn’t on the acute phase; the argument portion of Lyme is what do you do with this sub-portion of Lyme patients that seem to have their health completely unravel from this condition.
The term “Chronic Lyme,” once again, people will argue over how good that term is. But what we’re saying is, 10-20% of Lyme disease does not self-resolve. Your body cannot kick it out, and once your body cannot kick it out, it creates a chronic inflammatory state in the body, which leads to a diffused set of mysterious symptoms.
There is controversy on treatment, there’s controversy on testing, on how common it is, and how uncommon it is, how long it lasts and what it does. So, this is a huge argument happening within the medical community.
Now I’d like to point out (and I do point this out with my patients)…this actually is not as uncommon as we thought. If you look at the other famous spirochete, it’s called Syphilis. So if you read medical history, Syphilis has three stages. It doesn’t always go to all three stages. In fact, most of the time, it goes to stage one and not to stage two and stage three! Only in a small sub-population Syphilis causes complete and utter havoc.
If you look at a disease like Polio, most people know Polio because our president FDR had Polio. It causes this neurological paralysis problem. Well, it only does that a small percentage of the time! Some people say 1-5% of the time!
So, Lyme disease is not the only disease that a good majority of the time presents in this… “oh, I got flu, got sick, and then I got better, and that’s the end of it.”
But in a small percentage of the population, small being, 1-20% depending on exactly where you’re looking, it causes more problems, and people don’t just get over it.
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The first set of symptoms for Lyme that we see are related to Pain. It frequently causes pain! That can be headaches/migraines, which can be arthritis-type joint pain; it can be muscle pain. It very frequently causes pain. Probably ¾ of the time, it causes pain.
The other big set of symptoms are associated with Fatigue.
Chronic fatigue is very common with Lyme disease!
If you show up in our clinic with Fibromyalgia & fatigue syndrome, we start to wonder if you have Lyme.
The third set of symptoms it frequently causes are Neurological Symptoms. Patients get anxiety, depression, POTS, brain fog, and very abnormal neurological sensations.
If we see neurological symptoms such as brain fog, with pain and chronic fatigue, those are the big things in my brain that start to light up of “Is this a Lyme patient in front of me??…it at least has to be considered.”
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2 main reasons!
Where is Lyme in your body and what co-infections are you dealing with?
This topic of co-infections, when I go to ILADS conferences and Lyme disease conferences with doctors, is one of the biggest things you see a variance in between doctors.
A saying from doctors is that “The tick is nature’s dirty needle!”
These ticks live and eat mice blood and deer, and these things don’t just have Babesia or Borrelia, you know Borrelia is Lyme, Babesia is a common co-infection, they often have multiple things. So when you get bit by a tick, it’s not like you just got one present, you just got a whole hoopla of stuff that just went into your system!
And this is also what makes each case a little different!
So if you get Borrelia with Babesia, or Borrelia with a virus, or Borrelia with Bartonella, these are things that start to make each Lyme presentation very different because you get a different cocktail of microbial bugs that are now, we call them “the monkey piling on your back,” dragging you down.
It can make each patient a little different because it's not about just Borrelia or Lyme, it’s kind of this weird conglomeration of "you just got bit by a very, very dirty bug and probably got a couple of things in your system at the exact same time."
Not sure about your symptoms? Wondering if you might have chronic Lyme or Lyme plus co-infections? Request a free consultation!